Why We Give

We decided to make it our mission to help raise awareness and funds for the cystic fibrosis foundation after our sweet bryce was diagnosed with cystic fibrosis (CF) at two weeks old.
a portion of the proceeds from your purchase goes towards the Cystic Fibrosis Foundation in helping find a cure for CF.   

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Meet
 
 
Bryce & Elsie!

Bryce is a spirited 3-year old, who was diagnosed with cystic fibrosis at 2 weeks old, when his newborn screening came back inconclusive for CF.  His sister Elsie is 1-year old and received her diagnosis 2 years later almost to the day.

 

These amazing kiddos are the children of Sheli and nephew of jeanna and randi

(co-owners of Mantra Laces

 click here to learn more about us.)

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What is Cystic Fibrosis?

CF is a rare genetic disease that affects the Lungs and Digestive system.  The Body produces thick and sticky mucus that can clog the lungs and obstruct the pancreas. 

People with CF inherit two copies of the defective CF gene,  1 copy from each parent. Both Parents must have at least one copy of the defective gene. People with only one copy of the CF gene are called, "carriers", but they do not have the disease.  

Each time two CF carriers have a child together the chances are:

    25% (1 in 4) the child will have CF.  

50% (1 in 2) The child will be a carrier but not have CF.  25% (1 in 4) The Child will not be a carrier and will not have CF.

 

Treatments and Therapies

Bryce receives chest physical therapy for 30 minutes

2 times a day. This is performed by a vest that shakes him to loosen the mucus. He also receives multiple inhaled medications daily. overall amounting to about 3 hours of therapy a day just to stay healthy.

when he is sick this increases. 

Elsie receives her chest pt with a small therapy cup that is tapped around her chest, back and sides. this is performed my her parents. 

 

Because CF also effects the pancreas both Bryce and Elsie take enzymes before each meal. This helps them to break down fats and proteins and absorb nutrients.

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Exciting News!

On October 21, 2019 a new drug was approved by the FDA. 

Trikafta, is a highly effective therapy for the underlining cause of Cystic Fibrosis.  It is approved for use in people with CF ages 6 and older, who have at least 1 copy of the F508Del mutation, which Bryce and 90% of people with 

CF have.  

It is an extremely exciting step for the CF community.

 

Today Bryce and Elsie are thriving. Bryce loves running, playing with his big brother Rowan, and buzz lightyear. Elsie is a sweet and easy going 1 year old. Their diagnosis was life changing, but with the support of their family, it isn’t changing their lives! 

We continue to raise funds and awareness until one day CF stands for Cure Found.