Why We Give
We decided to make it our mission to help raise awareness and funds for the cystic fibrosis foundation after our sweet bryce was diagnosed with cystic fibrosis (CF) at two weeks old.
a portion of the proceeds from your purchase goes towards the Cystic Fibrosis Foundation in helping find a cure for CF.
Meet
Bryce & Elsie!
Bryce is a spirited 6-year old, who was diagnosed with cystic fibrosis at 2 weeks old, when his newborn screening came back inconclusive for CF. His sister Elsie is 3-years old and received her diagnosis 2 years later almost to the day.
These amazing kiddos are the children of Sheli and nephew of jeanna and randi
(co-owners of Mantra Laces
scroll
What is Cystic Fibrosis?
CF is a rare genetic disease that affects the Lungs and Digestive system. The Body produces thick and sticky mucus that can clog the lungs and obstruct the pancreas.
People with CF inherit two copies of the defective CF gene, 1 copy from each parent. Both Parents must have at least one copy of the defective gene. People with only one copy of the CF gene are called, "carriers", but they do not have the disease.
Each time two CF carriers have a child together the chances are:
25% (1 in 4) the child will have CF.
50% (1 in 2) The child will be a carrier but not have CF. 25% (1 in 4) The Child will not be a carrier and will not have CF.
Treatments and Therapies
Both Bryce and Elsie take the life changing medication Trikafta which has changed the look of their daily treatment. They went for daily vest therapy and hours of inhaled medications, to only using on an as needed basis.
As life changing as this medication has been for Bryce and Elsie, it is not available to all people with cf because of their genetic mutation.
this is why we continue to fight and raise awareness so one day all people with CF have treatment options.
Updates!
Today Bryce and Elsie are thriving. Bryce loves running, playing sports and swimming. Elsie loves soccer, dance and all things PINK! Their diagnosis was life changing, but with the support of their family, it isn’t changing their lives! Since Bryce's diagnosis we have raised over $170,000 for the Cystic Fibrosis Foundation and Bryce and Elsies Buddies.
We continue to raise funds and awareness until one day CF stands for Cure Found.